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Celiac Disease Foundation

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20350 Ventura Blvd Ste 240
Woodland Hills,  CA 91364
Phone: 818 716-1513

For every one person diagnosed with celiac disease, 85 are not. Help us end their needless suffering and support those who need us most.

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Real Life Story

My name is Kathy. I am a 57 year-old woman living in Washington, DC. For as long as I can remember, my skin has been a mess. As a little girl, I used to lie next to my mother in my bed crying about the itchy blotches that covered my body. I would scratch them so hard that I had to wear mittens to bed. As a teenager, I would stay at home rather than go out with my friends. I can remember being diagnosed with psoriasis, eczema, allergies, and even a bad case of anxiety. Nothing helped.

As an adult, it only got worse. My hair started to fall out. I spent months wrapped in gauze like a mummy. I could sometimes peel off sections of my skin like plastic wrap. My husband moved into the guest room because he said I kept him awake because I scratched loudly in my sleep. I was frustrated, depressed, and very often angry.

After seeing almost every dermatologist in the city, and being on a daily regimen of steroids, I had had enough! Finally, a friend recommended a doctor who looked at my skin and told me that he thought I had Dermatitis Herpetiformis, the skin form of celiac disease. He recommended that I get tested. I did. I tested positive for celiac disease. After a few weeks on a gluten-free diet my skin began to heal. My hair started growing back. I am buying nice clothes for the first time in my life. I am singing in a jazz band. I am traveling and enjoying my life.

I don't know how long I have suffered from celiac disease. What I do know is that I never heard of it until I was 55 years old. Now for the first time in my life, after years and years of suffering, I have hope.

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