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Celiac Disease Foundation

charity logo

20350 Ventura Blvd Ste 240
Woodland Hills,  CA 91364
Phone: 818 716-1513

Mission
For every one person diagnosed with celiac disease, 85 are not. Help us end their needless suffering and support those who need us most.

Email: info@celiac.org
Web Site: http://celiac.org

Real Life Story

My name is Kathy. I am a 57 year-old woman living in Washington, DC. For as long as I can remember, my skin has been a mess. As a child, I used to lie next to my mother in my bed crying about the itchy blotches that covered my body. I would scratch them so hard that I had to wear mittens to bed. As a teenager, I would stay at home rather than go out with my friends. I can remember being diagnosed with psoriasis, eczema, and even a bad case of anxiety. Nothing helped.

As an adult, it only got worse. My hair started to fall out. I could peel off sections of my skin like plastic wrap. My husband moved into the guest room because he said I kept him awake when I scratched loudly in my sleep. I was frustrated, depressed, and very angry.

After seeing almost every doctor in the city, and being on a daily regimen of steroids, I had had enough! Finally, a friend recommended a doctor who looked at my skin and told me that he that I had Dermatitis Herpetiformis, the skin form of celiac disease. He recommended that I get tested. I did. I tested positive for celiac disease. After a few weeks on a gluten-free diet my skin began to heal. My hair started growing back. I am traveling and enjoying my life.

My brother told me about CDF and the work that they are doing to try and stop the suffering of the 2.5 million undiagnosed Americans with celiac disease. CDF's goal is to assure that at least 500,000 of these individuals are diagnosed in the next 3 years. Now for the first time in my life, after years of suffering, the Celiac Disease Foundation's work in education, advocacy and research has given me hope.