(aka) Sjogrens Syndrome Foundation Inc
6707 Democracy Blvd, Suite 325
Bethesda, MD 20817
With 4 million Americans suffering from Sjögren's (upwards of 75% yet to be diagnosed), it is so important that we understand the seriousness of Sjögren's and why patients need to be diagnosed.
Lynne is a 36 year old patient and mother of two children, awaiting a double-lung transplant because her Sjögren's caused interstitial lung disease a complication that can occur in Sjögren's patients. Due to her deteriorating condition, Lynne chose the lung transplant as her last option as there is nothing more the doctors can do for her Sjögren's or lung issues. This is one of the many complications that Sjögren's patients fear of developing.
Fran is a 55 year old woman who was diagnosed with Sjögren's ten years ago and developed non-Hodgkin's lymphoma three years ago. As a Sjögren's patient, Fran knew she had a much higher chance (44 fold) of developing non-Hodgkin's lymphoma than a healthy individual and had been regularly monitored by her physician for the onset of lymphoma. Fran is now in remission from her lymphoma, however, she knows that some patients are not as lucky. This is especially true for those who have yet to be diagnosed with Sjögren's and thus do not know of their higher risk of developing lymphoma. Getting a diagnosis is critical so a patient can be monitored for serious side effects and complications.
Victoria is a 38 year old woman who became disabled from Sjögren's and had to resign from a career she loved - being a photo-journalist. She was later advised by her physicians to not have children as her life may be at risk due to pregnancy. She learned that babies of Sjögren's patients have an elevated risk of being born with fetal heart block.